Moebius Syndrome Foundation


Parent of an individual with Moebius syndrome
Parent Information
Please confirm - I am: *	An adult with Moebius syndrome A parent of a child with Moebius syndrome A friend or family member of someone with Moebius Syndrome A professional working with Moebius syndrome

First Name *
Last Name *


First and last name of spouse / partner
Last name spouse / partner

Phone *

Address 1 *
Address 2
City *
State/Province
State, Province, and Territory Codes ( Outside of USA or Canada)
Zip *
Zip Suffix
Country *

Email *
Email 2

What is your preferred contact method? *

How did you learn about the MSF? *

A critical part of the Foundation's Mission is to learn as much as possible about our members so we can best meet their needs. Please answer the following confidential questions about your child.

What is the name of the individual with Moebius syndrome? *

Birth Date *	// (mm/dd/yyyy)
Is the individual with Moebius a Twin? *

Was the individual with Moebius syndrome born with facial weakness? *	Yes No

Is the individual with Moebius syndrome UNABLE to move one or both eyes away from their nose toward their ears laterally?	Yes No

Check all that the individual with moebius has experienced *	Eye Issues Dental Issues Feeding Issues Hearing Issues Limb Difference Speech Issues Sleep Issues Social/emotional issues (depression/anxiety/social issues) Vision Impairment Poland syndrome Intellectual disabilities Autism spectrum disorder Complex medical needs

Would the individual with Moebius syndrome like to participate in research to advance our understanding of Moebius syndrome? *

Would you like to receive our bi-annual newsletter? *

Have you ever attended a MSF conference? *

Would like to volunteer at a future conference? *


I would like to connect with the following person/people:	A parent of a child with Moebius sydrome in my child's age range A parent of a child with Moebius syndrome in my geographic area A parent of a child with complex medical needs

I would like more information about:	Dental issues Eye Issues Feeding issues Hearing issues Limb difference Sleep issues Speech issues Social/emotional issues(depression/anxiety/social issues) Vision impairment Poland syndrome Intellectual disabilities Autism spectrum disorder

How can we further assist you?

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Parent of an individual with Moebius syndrome

Parent Information

A critical part of the Foundation's Mission is to learn as much as possible about our members so we can best meet their needs. Please answer the following confidential questions about your child.